The delivery of quality healthcare benefits everyone. Patients have better outcomes, clinicians make evidence-based decisions, hospitals and payers achieve financial efficiencies, and life science organizations develop safer products.

Help drive improved outcomes in a value-based care system. Leverage registry data—hub of quality improvement practices. Now you can bring multiple clinicians, sites, and patients together with a common goal. How? Through a robust data infrastructure and technical expertise—a framework.

Our framework has everything you need to securely collect, validate, transform, and interact with data to measure and improve processes and outcomes. Leverage powerful administrator tools as well as clinical, analytic, and business experts to provide strategic support. With ease, you can guide the path to quality care with flexible, consistent, control to meet your goals.

Ensure providers are compensated fairly and equitably for high-quality care.

It is not always a straightforward path for researchers.

Questions are complicated.

Priorities shift.

Real-world data is messy.

Simplify these complexities with modern analytics and science that create an efficient, reliable way to glean real-world evidence (RWE) from rich sources of disparate data that helps you accelerate discovery, advance patient care, and develop novel treatments.

Many different study designs are leveraged to support clinical research. Make sure the data you include is not limited. Registry data allows you to:

• Capture massive amounts of data from disparate sources and easily aggregate and enrich to provide a holistic lens
• Deploy advanced, scientifically grounded analytics to produce trusted research-grade evidence
• Interact at a deep clinical level with your data to create patient cohorts, analyze granular clinical details, and draw correlations within and across health conditions
• Track patient safety and inform clinical trial/study design
• Understand subpopulations including those affected by health disparities and heterogeneity of treatment effects
• Ensure alignment with Value/Outcomes Based Contracts that is dependent on accessing trusted RWD
• Employ registry technology to support post-market surveillance:
  • Access data from an existing registry
  • Partner with an existing registry
  • Create a new registry and consider combining one of the options above

A unique ‘treasure’ and resource in the worldwide scientific and medical environment.

Once you have your traditional research initiatives fueled, empower patients and extend your research breadth. Collect data from patients, their parents, siblings, partners, and caregivers to transform the full continuum of care. Allow patients to:

• View their own information
• Compare their information to de-identified, aggregate data from others with the same diagnosis
• Access specialized resources and education

Monitor, evaluate, and manage the complete cost and quality of episodes of care. Reduce variation and understand drivers of post-acute care costs.

Real-world data (RWD) drives this. Your operational goals need to leverage a data design that will inform and provide the critical measurement to ensure success. The types and sources of RWD that you will want to be collected—in the context of the routine delivery of care—are as follows:

• Clinical data from electronic health records (EHRs) and case report forms (eCRFs) provide patient demographics, family history, comorbidities, procedure and treatment history, and outcomes
• Patient-generated data from patient-reported outcome (PRO) surveys—these data provide insights directly from the patient and inform what happens outside of clinic visits, procedures, and hospital stays
• Cost and utilization data from claims and public datasets provide information regarding healthcare services utilization, population coverage, and prescribing patterns
• Public health data from various government data sources add critical information to enable stakeholders to best serve the needs of the populations they serve